JILLY'S (CHD/STROKE) JOURNEY...: Princess Jilly's Journey

PRAY FOR JILLY

I started this blog, in honor of my little girl...

JILLYANNA ROSEMARIE

JILLY, is not only a CHD WARRIOR,

but is also a STROKE SURVIVOR.

Jillyanna RoseMarie was born January 5th, 2007,

with a complex congenital heart defect "CHD" called

Hypoplastic Left Heart Syndrome (HLHS)

On March 1st, 2008 (at 14mo. old), Jilly suffered

a STROKE to the right side of her brain.

On November 4th, 2010, Jilly again, suffered

injury to her brain. Both times,

Jilly had to relearn EVERYTHING!

And both times, that is exactly what Jilly did!!!

Although from birth, Jillyanna was on a difficult journey

with HLHS... the STROKES took her on a far,

more difficult path!

We have experienced great sorrow and great joy,

but the most important part of our experiences...

is that with God's Love and Strength,

we learned how to FIGHT even harder than

we ever thought possible!

We thank God, for this journey

he has chosen for us!!!

JILLY AND I, WOULD LIKE TO LEND

OUR SUPPORT TO OTHER FAMILIES,

WHO ALSO TRAVEL THIS PATH!