I feel very sad, to be ending such a wonderful experience as Early Intervention Services. I can say, that in our State and County... Early Intervention is truely there, to help the children succeed!!! Our coordinator, Marlene has become a dear friend over the last 3yrs. and I thank her for all that she has done. We never had any trouble, getting the therapies needed for Jilly... approved. It has been a long 3yrs. of therapy in our home almost everyday of the week, and at times... 2x/day, EVERY DAY!!! We have had to work around so many health issues, but through it all... we have seen such improvement in our Jilly!!!
I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME!
THE PATCHWORK OF JILLY'S JOURNEY
PRAY FOR JILLY
I started this blog, in honor of my little girl...
JILLYANNA ROSEMARIE
JILLY, is not only a CHD WARRIOR,
but is also a STROKE SURVIVOR.
Jillyanna RoseMarie was born January 5th, 2007,
with a complex congenital heart defect "CHD" called
Hypoplastic Left Heart Syndrome (HLHS)
On March 1st, 2008 (at 14mo. old), Jilly suffered
a STROKE to the right side of her brain.
On November 4th, 2010, Jilly again, suffered
injury to her brain. Both times,
Jilly had to relearn EVERYTHING!
And both times, that is exactly what Jilly did!!!
Although from birth, Jillyanna was on a difficult journey
with HLHS... the STROKES took her on a far,
more difficult path!
We have experienced great sorrow and great joy,
but the most important part of our experiences...
is that with God's Love and Strength,
we learned how to FIGHT even harder than
we ever thought possible!
We thank God, for this journey
he has chosen for us!!!
JILLY AND I, WOULD LIKE TO LEND
OUR SUPPORT TO OTHER FAMILIES,
WHO ALSO TRAVEL THIS PATH!
1 comment:
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