JILLY'S (CHD/STROKE) JOURNEY...

I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME!








THE PATCHWORK OF JILLY'S JOURNEY

PRAY FOR JILLY



I started this blog, in honor of my little girl...

JILLYANNA ROSEMARIE


JILLY, is not only a CHD WARRIOR,

but is also a STROKE SURVIVOR.


Jillyanna RoseMarie was born January 5th, 2007,

with a complex congenital heart defect "CHD" called

Hypoplastic Left Heart Syndrome (HLHS)

On March 1st, 2008 (at 14mo. old), Jilly suffered

a STROKE to the right side of her brain.

On November 4th, 2010, Jilly again, suffered

injury to her brain. Both times,

Jilly had to relearn EVERYTHING!

And both times, that is exactly what Jilly did!!!

Although from birth, Jillyanna was on a difficult journey

with HLHS... the STROKES took her on a far,

more difficult path!

We have experienced great sorrow and great joy,

but the most important part of our experiences...

is that with God's Love and Strength,

we learned how to FIGHT even harder than

we ever thought possible!

We thank God, for this journey

he has chosen for us!!!


JILLY AND I, WOULD LIKE TO LEND


OUR SUPPORT TO OTHER FAMILIES,


WHO ALSO TRAVEL THIS PATH!










Wednesday, April 18, 2012

Happy Easter, 2012

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About Me

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Joy
Horseheads, N.Y.
I am Jilly's mommy, not of my womb but of my heart. I was blessed to become Jilly's mommy, when she was 6wks. old. I am also the mother of 4 older boys (one is in heaven).
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      • Happy Easter, 2012
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Labels

CHD (3) CHD AWARENESS (1) CHD's (1) Friends sharing awareness (1) History (1) Lessons learned (1) LINK (1) List of CHD Warriors/ STROKE Survivors (1) March 1st 2008 (1) MEDS. (1) pictures (1) SEIZURE (1) Special Needs (1) Speech Issues (1) STROKE (5) Stroke awareness (1) Therapy (1)

Popular Posts

  • Re-posting an old story of our journey... needs updating... for sure!!!
    Tuesday, August 24, 2010 "OUR STORY" for a heart story event: Another "heart mom" is having an event where sh...
  • Speech issues:
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  • A story of two very special ROSES...
    http://fromawriterskitchen.blogspot.com/2010/03/working-title-hearts-and-roses-blog.html A very dear facebook friend, and fellow blogger sug...
  • Feb. 14th, 2013
    Feb., 2013... another year gone by! A wonderful year of learning and growing. Again, it hasn't been easy but I still feel very blessed t...
  • Goodbye to Early Intervention
    I feel very sad, to be ending such a wonderful experience as Early Intervention Services. I can say, that in our State and County... Early...
  • February, 2012 CHD Awareness Month
    As this year begins, I look back on 2011 and am so grateful for all that we have been through! When we think of CHD's... you would think...
  • (no title)
    It's been a long time since I blogged, but I may start doing more of it... we are still on this journey full of twists and turns... our ...
  • Feb. 7th, 2012 CHD AWARENESS WEEK:
    Today is the official start of CHD awareness week. Each year Feb 7-14 is recognized as CHD awareness week. If your child had it, wouldn'...
  • "OUR STORY" for a heart story event:
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  • Should pics of our precious childrens scars/surgeries be posted for all to see???
    I just read a very interesting posting, from an adult CHD'er. It was received by others, in many different ways... this is my thoughts o...

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Looking at HLHS

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