JILLY'S (CHD/STROKE) JOURNEY...: 2013

PRAY FOR JILLY

I started this blog, in honor of my little girl...

JILLYANNA ROSEMARIE

JILLY, is not only a CHD WARRIOR,

but is also a STROKE SURVIVOR.

Jillyanna RoseMarie was born January 5th, 2007,

with a complex congenital heart defect "CHD" called

Hypoplastic Left Heart Syndrome (HLHS)

On March 1st, 2008 (at 14mo. old), Jilly suffered

a STROKE to the right side of her brain.

On November 4th, 2010, Jilly again, suffered

injury to her brain. Both times,

Jilly had to relearn EVERYTHING!

And both times, that is exactly what Jilly did!!!

Although from birth, Jillyanna was on a difficult journey

with HLHS... the STROKES took her on a far,

more difficult path!

We have experienced great sorrow and great joy,

but the most important part of our experiences...

is that with God's Love and Strength,

we learned how to FIGHT even harder than

we ever thought possible!

We thank God, for this journey

he has chosen for us!!!

JILLY AND I, WOULD LIKE TO LEND

OUR SUPPORT TO OTHER FAMILIES,

WHO ALSO TRAVEL THIS PATH!

Thursday, February 14, 2013

Goodbye to Early Intervention

I feel very sad, to be ending such a wonderful experience as Early Intervention Services. I can say, that in our State and County... Early Intervention is truely there, to help the children succeed!!! Our coordinator, Marlene has become a dear friend over the last 3yrs. and I thank her for all that she has done. We never had any trouble, getting the therapies needed for Jilly... approved. It has been a long 3yrs. of therapy in our home almost everyday of the week, and at times... 2x/day, EVERY DAY!!! We have had to work around so many health issues, but through it all... we have seen such improvement in our Jilly!!!

Feb. 14th, 2013

Feb., 2013... another year gone by! A wonderful year of learning and growing. Again, it hasn't been easy but I still feel very blessed to be on this journey with our Jilly!!! CHD Awareness month/ awareness week, and also another anniversary of being on this journey. We met Jilly in February, 2007 when she was 5wks. old. She was in our custoday at 6wks. old and we have been together ever since. Looking back, it is so clear to see the path God has led us on... reasons for all these trials we have experienced because it brought us to today, Feb. 14th, 2013. Happy Heart Day!!! God bless!!!