Nothing major to post... Jilly is doing wonderful!!! She is growing and learning, strengthening, and become a feisty (almost 5yr. old)! Her tummy issues are still a problem, but not a big one... she continues to retch and vom. everyday... but usually only a couple of times, and she deals with it amazingly! She has been on oxygen 24hr./day for over a year and we expect her to need it until her next heart surgery (possibly next Spring or Summer)... the next scheduled proceedure will be a heart cath. in the Spring which will determine the next move.
Jilly has 13 therapies/wk. and loves it... mostly! She waits for her 4 different therapists to come and quickly tells them bye when they are done (or she is done).
Jilly is such a happy, funny little girl that brings so much Joy to our lives!!! She weighs 40lbs. which is just amazing for a cardiac kid who is not quite 5yrs old.
We thank God, for all these wonderful things he has blessed us, and her with!!!
Heart hugs!!!
No comments:
Post a Comment