I am so so blessed to have wonderful therapists for Jilly!!! We have therapy every day, 2 on every day but Mondays. I will be lost someday, when Jilly goes to school and we do not have therapy at home each day. It is so exciting, to learn about their therapy skills!!! I think, when Jilly does go to school, I will be looking for a job somewhere in the school districts... working with these special children! It is so rewarding, to watch a special needs child learn... it does not matter if it is the traditional learning that most kids do, it is learning!!! I encourage every parent of special needs children... to find their child's special gifts, and push them to use those gifts the best that they can! We are so proud of Jilly!!! She may not talk or walk like most children... but she continues to amaze us every day! Her physical therapy skills are improving by 3months... every 6months. That is a really good rate, for all she has been through! And her skills in speech/special instruction, are unbelievable!!! When a child who has spent 1/3 of her life in the hospital, and 1/3 recovering... she truely has only had 1yr. of her 3yrs. to work on these skills! And yet, she can test in a 4yr. range for her receptive skills (she understands everything we say)! No, she does not talk with her mouth... but it is a rare moment, when we do not know what she is telling us!!! She signs and gestures anything she needs or wants to say! I ask our therapists to push her, as I know that it is for the better... and she truely enjoys being pushed!
Yes, I am bragging about my child... I am so proud of her, and I am so thankful to all the therapists who have worked with her... planting the seeds, for a successful life! So, this post is to say Thank you to Pat and Tina, for all of their hard work, love and compassion... to help my Jilly succeed!
My wish is that everyone with a special needs child... will find those special people, who really care and want the best for their child!!!
I am so proud, to be a mom of a SPECIAL child!!!
I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME!
THE PATCHWORK OF JILLY'S JOURNEY
PRAY FOR JILLY
I started this blog, in honor of my little girl...
JILLYANNA ROSEMARIE
JILLY, is not only a CHD WARRIOR,
but is also a STROKE SURVIVOR.
Jillyanna RoseMarie was born January 5th, 2007,
with a complex congenital heart defect "CHD" called
Hypoplastic Left Heart Syndrome (HLHS)
On March 1st, 2008 (at 14mo. old), Jilly suffered
a STROKE to the right side of her brain.
On November 4th, 2010, Jilly again, suffered
injury to her brain. Both times,
Jilly had to relearn EVERYTHING!
And both times, that is exactly what Jilly did!!!
Although from birth, Jillyanna was on a difficult journey
with HLHS... the STROKES took her on a far,
more difficult path!
We have experienced great sorrow and great joy,
but the most important part of our experiences...
is that with God's Love and Strength,
we learned how to FIGHT even harder than
we ever thought possible!
We thank God, for this journey
he has chosen for us!!!
JILLY AND I, WOULD LIKE TO LEND
OUR SUPPORT TO OTHER FAMILIES,
WHO ALSO TRAVEL THIS PATH!
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