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CLICK ON ABOVE, AND VOTE FOR THE CHD CAR!!!
NASCAR WILL HELP US SPREAD AWARENESS!
I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME!
THE PATCHWORK OF JILLY'S JOURNEY
PRAY FOR JILLY
I started this blog, in honor of my little girl...
JILLYANNA ROSEMARIE
JILLY, is not only a CHD WARRIOR,
but is also a STROKE SURVIVOR.
Jillyanna RoseMarie was born January 5th, 2007,
with a complex congenital heart defect "CHD" called
Hypoplastic Left Heart Syndrome (HLHS)
On March 1st, 2008 (at 14mo. old), Jilly suffered
a STROKE to the right side of her brain.
On November 4th, 2010, Jilly again, suffered
injury to her brain. Both times,
Jilly had to relearn EVERYTHING!
And both times, that is exactly what Jilly did!!!
Although from birth, Jillyanna was on a difficult journey
with HLHS... the STROKES took her on a far,
more difficult path!
We have experienced great sorrow and great joy,
but the most important part of our experiences...
is that with God's Love and Strength,
we learned how to FIGHT even harder than
we ever thought possible!
We thank God, for this journey
he has chosen for us!!!
JILLY AND I, WOULD LIKE TO LEND
OUR SUPPORT TO OTHER FAMILIES,
WHO ALSO TRAVEL THIS PATH!
2 comments:
I hope you and Jilly are having a loving day. I must say that it is amazing what love can do for a child--for anyone as a matter of fact. I think it was certainly kismet that brought you to the hospital shortly after Jilly's birth. I know the path has been difficult but, to me, it also seems beautiful. I know you created the blog to raise awareness. I know your time is limited but I suggest you reach out to other bloggers--those not a part of the CHD/Stroke family. By reading and commenting (and this is what bloggers seek) on their blogs, you will be reaching more of the general public who may "jump on the bandwagon" so to speak. The world should know about this situation, not just those living the life. And, there are blogs that are sure to brighten you day.
Best,
Bonnie
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